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Leading transplant experts share vital information to help you make informed healthcare decisions before and after transplant.

Astronauts, Transplant and CAR T-cell Recipients: What Do They Have In Common?

Strategies astronauts use to stay fit during space flight can help bone marrow/stem cell transplant and CAR T-cell recipients.
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The skin is the most common organ affected by graft-versus-host disease (GVHD). Treatment options depend on type of GVHD and symptoms
Oral GVHD is a treatable condition which can impact the salivary glands, cheeks, tongue, lips and other areas of the mouth. Regular evaluations with an experienced dentist are key to finding relief and solutions.
Eyes can be damaged by graft-versus-host disease (GVHD). Treatment options depend on symptoms, but most long-term effects are preventable.
Graft-versus-host disease often affects the gastrointestinal system, and sometimes the liver. Prednisone is usually the first line of treatment. Other medications and therapies are available if prednisone, alone, is not effective.
Genital graft-versus-host disease (GVHD) can affect both men and women after transplant, making sex painful. Topical steroids and, in some women, estrogen is the usual treatment.
Fourteen to 15% of patients who develop chronic graft-versus-host disease after transplant develop bronchiolitis obliterans syndrome (BOS), a common manifestation of lung GVHD. Outcomes are best in patients diagnosed and properly treated early in the course of the disease.
Speakers: Kenneth Miller MD, Tufts Medical Center; Christina Ferraro MSN, CNP,CMTCN, Cleveland Clinic Recorded October 12, 2019 at the National GVHD Patient Summit Presentation 40 minute, Q&A 20 minutes Highlights
Patients with graft-versus-host disease can experience different types of pain, depending on which organ GVHD is affecting. Pain medications have limited effect, and their effectiveness varies from one person to another. A palliative care specialist can help patients develop a comprehensive pain management plan involving both medication and other treatment modalities.
Discover adaptive technologies which can help a person with GVHD live an independent life. Areas covered include: toileting, bathing, dressing, personal hygiene, daily activities, cooking, housework, computer use, structural adaptations and getting in and out of bed. Potential sources of devices and how to find an Occupational Therapist are also explored.
Being a caregiver for a person with GVHD presents unique challenges and stresses. Through regular personalized self-care, community support and a focus on leading a meaningful life, the physical and mental toll of caregiving can be managed.
Transplant survivors with Graft versus Host Disease (GVHD) have a high likelihood of developing emotional and mental health complications. However, there are many strategies for survivors to cope and overcome, anxiety, depression and PTSD associated with GVHD.
Insomnia is a common problem after transplant. Although sleep hygiene and medication are widely promoted to resolve the problem, cognitive behavioral therapy for insomnia is actually a more powerful tool.
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One-on-One Peer Support

Talk to someone who has been a transplant or CAR T-cell patient or their caregiver. Get ideas to help you through treatment.

GVHD Support Groups

Join a Support Group

Join a private online support group for patients or caregivers living with chronic graft-versus-host disease (GVHD). Groups are also available for people who have received CAR T-cell therapy.

Mental Health Directory

Find a Mental Health Provider

Find a mental health provider who understands what's involved in undergoing a transplant or CAR T-cell therapy or living with graft-versus-host disease (GVHD).