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Brad
I'm sharing a poem that expresses the feeling of having GVHD, as a result of a stem cell transplant with my brother as my donor:
Read stories of inspiration. Use the search feature to narrow your search.
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Kristine
The annoyance of GVHD comes and goes, but the beauty of life and all that is before me is what I live for. Peace and blessings, you can do this too!!
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Christine
Find the good in every day, and keep smiling. As my donor sister says, smiling is the best.
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Patti
Thankfully, I have a loving, supportive family and community. Grateful to be celebrating another year post-transplant.
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Gregg
Life. This is the one life we get. We have to fight for it. Since birth really. Don’t give up. I have wanted to so many times. We can beat this. Enjoy life when you can. Laugh. Love. Dance and sing. Do it all!
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John
It is hard to imagine this when you are fighting the beast every day, but someday you will have to remind yourself to stop and smell the coffee and not get so wrapped up in the rat race of life. Remember to thank your caregivers
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Kimberly (Mother)
I want him to be a normal child one day
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Helene, BMT physician from Belgium
With all my respect for the difficulties GvhD patients face despite our best efforts to help.
Street art from Belgium
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Wayne
Strength doesn't come from overcoming what you can do, it comes from overcoming the things you once thought you couldn't!
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Becky
I fight GVHD for my husband, family and for others like me.
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Morgan
It gets better... Things will get better.
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Renee
Looking forward to the time when I no longer fear GVHD because it has not come back!
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Ossium Health
We're inspired by today's patients to help make allogeneic BMT a fundamentally safer procedure for future patients.
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Dawn
Watch Dawn's video to hear words of hope!
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Jullian
I hope that a cure can be found one day and that we can all dance in celebration of a cure!
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Steve
GVHD is an inconvenience but I am alive.
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Rick
My message of hope is to never give up....
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The Rehab Staff
The Rehab Staff at Stanford Health Care are fighting alongside our patients and families.
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Lisa
Thank goodness, I have the best team of professionals handling every aspect of my GVHD. Tacrolimus, Photophores and lots of hope. I’m slowly getting stronger and healing the best I can.
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Danielle
Even with all my GVHD, we are grateful for our lives and all we are blessed with.
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Laurie
Conquer GVHD!
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Ingrid
Jessa against GVHD #proud #bettertogether
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Kathy
Feeling thankful for having mild GVHD and hopeful that my MDS friends find treatments that help.
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Amelia
I wish continued improvement and hope for all the other survivors out there
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University Hospitals Leuven, Belgium
We are stronger together!
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Angela
Hopefully, in the near future, there will be amazing advances in medicine to ensure that nobody has to deal with this in the future!
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Michele
I support gvhd awareness because I am a patient experiencing this disease and there are not enough doctors around who understand it and what it can do to a body. There is also no funding available, that I am aware of, to support
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Millie
My daughter has been a GVHD patient with ongoing changing symptoms which are not easily diagnosed or treated. I hope, with awareness, some light will be shed on all those in need who are suffering with this little-recognized
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Kash
Hello, in honor of my 22 year old son Kash, who had a BMT 2 years ago and is dealing with some GVHD, our family decided to sport our bracelets all week and we even managed to take a few pics in support of him and all of those
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ECP has helped me, but I need to drive 3 hours each way to get it
My mom has to travel every week to Boston, MA from Albany, NY (approx. 3 hours) to get Extracorporal photopheresis (ECP), which is a proven treatment for chronic GVHD and has been a tremendous help with my mom's symptoms. However
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Peter
Both my brother and I suffered the consequences of lymphoma during the past seven years. We were both blessed with the positive outcome of medical treatments that eradicated the cancer. I had an autologous stem cell transplant and
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Jim
At one point in my 31-year survival of multiple myeloma (which has a 5 year average survival), the oncologist told me nothing was left, I should go to a hospice. I refused, instead electing for an allo transplant. The allo and an
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Nancy
We all have a different journey and the journey is constantly changing with GVHD. With GVHD, sometimes it is here for the long haul while other times GVHD makes a strong, short appearance. Either way, just take it one day at a
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Pat
After running a group for transplant survivors who had moderate to severe GVHD, i support this day 100%. A brave, resilient group of people, who deal with daily stress with grace and forward thinking.
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Stanford Health Care
Together against GVHD
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Michele
I support gvhd awareness because I am a patient experiencing this disease and there are not enough doctors around who understand it and what it can do to a body. There is also no funding available, that I am aware of, to support
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Lab worker
Together against GVHD
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University Hospitals Leuven, Belgium
Together we continue to look for preventive measures to rule out GVHD and treat the side effects in those already affected
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Belgian BMT Team
We are stronger together
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Jennifer J
Hello! I have experienced GVHD and offer my support to others who are traveling this path. Although I was forewarned before my transplant that there was a good chance that I would experience GVHD, I was mostly focused on trying to
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Diane
Hi. My name is Diane. And I just wanted to tell anybody that’s reading this that I am a friend of somebody that has GVHD. He recently had a bone marrow transplant a few months ago. They were very much aware of all the
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Marilyn
My sweetheart has had GVHD for 5-6 years after a stem cell transplant. He has been on trials from Dana-Farber in Boston to NIH. His full time job is to beat it. He continues to ride his bike, walk and stay positive. He is a
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Erica
My husband is in thankfully two years in remission from acute lymphoblastic leukemia due to a life-saving stem cell transplant. Our family is grateful for this time with him, but GVHD of the lungs and joints has left him quite
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Joan
My doctor prescribed physical therapy and medications that decreased my GVHD symptoms. I am grateful.
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Jennifer
I have been an oncology social worker for over 25 years. I wear this bracelet in honor of all those I have met suffering with this disease. I wear it to raise awareness for proper treatment and funding for new research to battle
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Dr. Helene S.
GVHD is like a box of Belgian chocolates...You never know what you're gonna get. Let's team up to improve the lives of GVHD patients
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Paula M.
I live with the challenges of GVHD after a bone marrow transplant in 2018. At times it can actually feel worse than my initial diagnosis of AML. I have a wonderful team of doctors thru the University of Michigan. They are very
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Joanna
My husband and I agreed that we needed to keep laughing whenever we could! We often had to work to find food that was palatable since GvHD made a mess of my entire GI tract. This was a silly celebration of a meal that worked! Our
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Valerie
Hello! I was reading your stories and have my own to share which I hope will inspire others. Even though I had a rough road after transplant and became disabled by lung GVHD, I found the power of art and humor for healing along
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Barbara
I want those who are suffering with GVHD to have HOPE. I am 5+ years post transplant and during year one I had skin GVHD a couple of times. Although more mild than organ or eye GVHD or some others, it was really painful and I
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David
I was first diagnosed with MDS about 4 years ago and went through a donor stem cell transplant. It was a rough year-and-a-half living in a virtual bubble, with constant blood transfusions, profound weakness, hair loss, temporary
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Sharon
Progress for GVHD is so painstakingly slow. Even more frustrating is that the medical community does such a poor job of preparing transplant patients for cGVHD. This is especially true for vaginal GVHD. Women continue to suffer
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Sue S.
As a caregiver (wife) of a GVHD patient, I found support and hope in the GVHD caregiver’s support group offered through BMTInfonet.
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Millie
My daughter has been a GVHD patient with ongoing changing symptoms which are not easily diagnosed or treated. I hope, with awareness, some light will be shed on all those in need who are suffering with this little-recognized
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Linda
We get it! It’s complicated and everyone is different. Know that there is support and help. But more needs to be done.5-year GVHD survivor.
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John
I am inspired to continue fighting so that I can take care of my family and loving wife and see my children grow.
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Kate
I support GVHD patients because I struggled with GVHD for 3 years after my transplant. It wasn't easy but I got through it and I encourage anyone with GVH to just keep moving forward.
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Tabatha
From a 15-year stem cell transplant survivor, we all go through our own trials with GVHD, unfortunately some worse than others! But together we can get through anything! Keep smiling! You are stronger than you know! God bless each
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Deborah
Don’t give up! Everyone responds differently to treatments. Work with your doctor to try different things that work for you. Now (fall 2022) down to Jakafi .5 every other day
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Susan P.
Seek out positive people in your life, find activities that make you happy or feel productive, and build exercise into your day. You've got this!
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Carolyn
So Ironic that February 17th is the 1st ever GVHD Awareness Day. It will be my son, Dylan's 31st birthday. Diagnosed at age 9 with osteosarcoma enduring the loss of his leg. Three years later with myelodysplasia. Stem cell
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Brave Patient from Belgium
Another brave patient from Belgium!!
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Alan
Even though my beautiful wife lost her battle with GVHD I will always support the cause. I pray that someday there will be a way to stop this disease that gets in the way of a life saving treatment. For you that are fighting this
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Kelly
Keep in mind that a little (or a lot of) GVHD may mean the donor cells will be attacking any residual cancer cells you may have, and you may have a lesser risk of the cancer returning. I hope that gives you some comfort.
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Emily and Korey
We care!
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Dawn
Even with all my GVHD, we are grateful for our lives and all we are blessed with.
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Paula O
I have been dealing with GVHD for 5+yrs and at times it has it’s challenges, but I continue to stay active as possible, I try to stay as positive as possible and continue to live as normal a life as possible. Stay Strong
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Douglas
I have had GVHD since my bone marrow transplant September 2012. I am 10 years old with my new chance of being on earth, 55 in all. I feel accountable for this time, which could be a negative thing, since I am less focused and
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